Caregivers in the Home

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"Your doctor can diagnose your problem and how to treat it, but he can't tell you how to live with it," said Ron, quoting his wife, the love of his life.

Caregivers in the Home: Their Portraits and Stories, A Labor of Love documents the experience of in-home caregivers, holistic and unadorned. Their portraits reverberate with visual intimacy, revealing their strength, angst, courage, and love. Their stories reveal their essential attributes: kindness, compassion, faith, hope, autonomy, and advocacy.

Day in, day out, together or separated, these caregivers focused on keeping their loved ones safe and secure. Well-thought-out plans for a loved one were disturbed in unexpected ways, and there was no such thing as a normal daily routine. Hope and aspirations made a difference in their lives and the lives of their loved ones. Empathic relationships with clinicians validated caregiver commitment and advanced the goals of care.

Caregivers in the home go largely unnoticed, and the care they provide is often underappreciated by family members, clinicians, and, on occasion, their loved one. The call to serve is intense. How do they stay with it?