Lily’s Love

A child's-eye view of seizures, sibling love, and strength in uncertainty.

When your sister has seizures, life can feel confusing, scary, and unpredictable. Why does she shake? What should I do? Is it my fault? These are questions siblings often ask-but rarely get clear, comforting answers to.

Inspired by the true story of the author's sister, who had epilepsy from CDKL5 Deficiency Disorder, this book gently explains what seizures are, what they're not, and how siblings can feel empowered rather than helpless. Through relatable storytelling and calming illustrations, children learn how to respond to seizures, express their feelings, and support the sibling they love.

Whether you're a parent, caregiver, educator, or therapist, this story offers a developmentally appropriate and emotionally honest way to talk about epilepsy and neurological disorders-especially with siblings who live alongside them every day.

Created for children ages 37, but valuable for anyone wanting to build compassion and calm around a very real part of life for many families.