Loie’s Disease: A Book About Leukodystrophy

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Leukodystrophy is a life-limiting neurological disorder that can affect both children and adults.

In an illustrated story based on her conversations with her children after their sister, Cal, was diagnosed with leukodystrophy, Maria Kefalas delivers a simple and powerful explanation from a child’s point of view that explains the workings of the brain, what a diagnosis means, and how to face the challenge as a family.

This is a beautiful book that delivers a powerfully simple, no nonsense explanation of leukodystrophy … it reminds us that every single child needs and responds to our love and kindness.
-Rebecca Brenner, former teacher